You may have seen our new page where you can sign up to get help making an appointment with a hearing care professional in your area. We wanted to take a minute to explain why Oticon Medical offers this service, and what it can do for you or someone you know who’s on the journey of finding the best hearing solution possible.
When most people start searching for hearing solutions, what they don’t realize is that all clinics don’t offer all of the available solutions. In fact, in some cases, people don’t even know what their options are. They only know what the clinic has offered them. From people who weren’t aware of bone anchored hearing solutions at all, to those who thought only one type of bone anchored hearing solution existed, we hear from a lot of people who have been in this situation. If this is your case, you’re not alone!
Maybe you had just moved to a new city where you didn’t know anyone. Maybe you experienced an unexpected breakup. Or, maybe you just felt unappreciated. The thing is, with any of those ‘alone’ moments, the moment passes. You make friends. You meet someone new. Somebody compliments you.
For Rebecca Davenport, that moment never passed.
“My world was so quiet. You’re isolated. You don’t know what’s going on in your environment.”
Rebecca, a mother of four and PhD candidate, was diagnosed with an Acoustic Neuroma in August 2013, a tumor of the Eighth Cranial Nerve responsible for hearing. Rebecca met with physicians in Portland and after weighing the pros and cons, they deemed it necessary for her to have two surgeries.
As with most surgeries, there were no guarantees. From the routine to the most complex, there is always some degree of risk involved. In Rebecca’s case the risk was high.
Ponto Wearer Kris Siwek Gives— and Gets— the Ultimate Gift
Kris Siwek is a Ponto wearer and advocate that we know well. Kris suddenly lost her hearing after being diagnosed with a tumor at age 29. Kris, pregnant at the time, did intense research to find the best solution for her survival and recovery— from her acoustic neuroma removal to finding the right hearing solution. Kris actively shares her story and advocates for those with acoustic neuromas and hearing loss.
When we spoke with Kris last week, we could see her face light up when she mentioned her donated Ponto would go to a 7-month-old through Ear Community. Heres’ more about that 7-month-old, Clark. As Kris put it, “It’s just so perfect.”
“In April of 2014, Max and Melissa Witt gave birth to a beautiful sweet baby boy named Clark. When Clark was born, he was originally diagnosed with having Goldenhar Syndrome and Hemifacial Microsomia. Clark was also born without his left ear due to having Microtia and a missing ear canal due to having Atresia, resulting in hearing loss,” Melissa Tumblin, Founder of Ear Community writes in the original piece about the story on Ear Community. “Clark’s parents did everything they could to provide him with proper healthcare prenatally. They had level 2 ultrasounds, genetic screenings, even a fetal echocardiogram… However, it wasn’t until Clark was almost 2.5 months old (after birth) when Clark’s doctors discovered that his heart had a double aortic arch. Clark underwent heart surgery at just 5 months of age to fix his heart.” Continue reading →
Note: Mark Ruffalo is not a Ponto user, and he is not endorsing Oticon Medical’s products. He has gone through the experience of having an acoustic neuroma– that’s why we are sharing his incredible story.
There’s a number of Bone Anchored Hearing System users who have been through the experience of overcoming an Acoustic Neuroma. The diagnosis can be shocking and overwhelming. Today, we’re shedding more light on Acoustic Neuromas with information from the Acoustic Neuroma Association— including an incredible video account of actor Mark Ruffalo’s experience.
First things first, what is an Acoustic Neuroma? According to the Acoustic Neuroma Association: “An acoustic neuroma, known as a vestibular schwannoma, is a benign (non-cancerous) growth that arises on the eighth cranial nerve leading from the brain to the inner ear. This nerve has two distinct parts, one part associated with transmitting sound and the other with sending balance information to the brain from the inner ear. The eighth nerve, along with the facial or seventh cranial nerve, lie adjacent to each other as they pass through a bony canal called the internal auditory canal. This canal is approximately 2 cm (0.8 inches) long. It is generally here that acoustic neuromas originate from the sheath surrounding the eighth nerve. The seventh or facial nerve provides motion to the muscles of facial expression.”
Acoustic Neuromas are typically slow growing over time. Continued tumor growth that goes untreated may threaten neurological function and even life. The treatment options are observation, surgical removal or radiation.
Actor Mark Ruffalo knows the experience of having an Acoustic Neuroma all too well. After having a nightmare about having a brain tumor, Mark went to the doctor knowing his request for an MRI would sound paranoid. But to everyone’s surprise, except for Mark, he was right.