Tag Archives: Atresia

‘We wanted the very best’ – a parent’s perspective on choosing the Ponto Bone Anchored Hearing System

Zhou Yu (“Z”) was born with bilateral microtia and atresia. While living in China he was unaided until he was adopted almost 2 years ago by the Bullock family. His mother Erin began doing research regarding what the best hearing care options would be for Z, knowing he would have progress to make not only learning a new language but hearing for the first time.

“It was not a hard decision to make once we did all the research. The stories that adults and older children were telling were the stories we needed to here. When we demoed products, he even could tell the difference and he picked Ponto” – Erin

In the video below, Erin explains why her family chose Ponto and the difference it is making in her son Z’s life.

Interested in learning more about our newest Ponto – the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.

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2017 Ear Community Microtia and Atresia Summer Family Picnics

It’s that time of year again when the weather gets warmer and we start making our summer plans! We’re thrilled to once again be sponsors and participants in the Ear Community’s Microtia and Atresia Summer Family Picnics.

Every year, Ear Community hosts picnics all around the world helping bring Microtia and Atresia families together to share experiences and make new friends. Medical professionals such as Microtia and Atresia repair surgeons, anaplastologists, ENT’s, audiologists, and therapists along with hearing device companies all come together at the events to educate and inform attendees of their options. The picnics are free and provide lunch and family friendly activities.

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This year’s picnics will take place in the following locations around the U.S.:

Maryland Ear Community Picnic
Annapolis, Maryland
Date:  Saturday June 10th, 2017
Time:  11AM to 3PM
RSVP to Heidi at:  AnnapolisEarCommunityPicnic@gmail.com

Texas Ear Community Picnic
Austin, Texas

Date:  Saturday, June 10th, 2017
Time:  11AM to 3PM
RSVP to Heidi at:  AustinEarCommunityPicnic@gmail.com

Colorado Ear Community Picnic
Broomfield, Colorado
Date:  Saturday June 24th, 2017
Time:  11AM to 3PM
RSVP to Melissa at:  ColoradoMicrotia@hotmail.com

New York Ear Community Picnic
Ardsley, New York
Date:  Saturday, July 22nd, 2017
Time:  11AM to 3PM
RSVP to Heidi at:  ArdsleyEarCommunityPicnic@gmail.com

Florida Ear Community Picnic
Fort Pierce, Florida
Date:  Saturday, July 22nd, 2017
Time:  11AM to 3PM
RSVP to Heidi at:  FortPierceEarCommunityPicnic@gmail.com

Tennessee Ear Community Picnic
Nashville, Tennessee
Date:  Saturday, July 22nd, 2017
Time:  1PM to 5PM
RSVP to Melissa at:  TennesseeEarCommunityPicnic@gmail.com

We look forward to seeing you there!

“We’re Just Trying To Do What’s Best for Him” – A Parent’s Perspective

Davin is 8 years old and was born with bilateral microtia and atresia. In the video below, Davin and his mother, Shannon Gordon, talk about his hearing journey with his Ponto’s and their experience with the new Ponto 3 SuperPower.

“Davin’s hearing is one of the most important things in our life and we’re just trying to do what’s best for him.” – Shannon

Interested in learning more about the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.

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The Gift of Hearing Travels to Africa

We’d like to introduce you to someone very special!

Meet Raheeg Abdelrahman, a four-year-old girl living in Sudan with her younger twin siblings, her mother, and her father, Eltahir.

Raheeg was born with bilateral Microtia and Atresia, and when her family couldn’t find a suitable hearing device in Sudan, they traveled to Egypt to meet with an audiologist who they hoped could help them find a solution. Unfortunately, the family was unable to find an affordable solution and were forced to return home without a device for Raheeg.

That’s when we heard about Raheeg and her family through our friends at the Ear Community and partnered with them to provide two Oticon Medical Ponto Plus hearing devices for her.

The devices were sent to Egypt where Raheeg was fitted with her devices with great results:

 “She can answer our call easily and surely this will help her to receive her lessons like other kids…it is difficult to get words to express my thanks but I say God bless you!

Please convey my deepest heartfelt thanks and appreciation to all of Oticon Medical staff for the help and support they provide to everybody in our Ear Community, and special thanks for Mr. Alan Raffauf, Tove Rosenbom, and Claus Frees Horneman…THANKS to YOU dear friends for giving me hope that my daughter can go to school, hearing sounds and practice her life like other kids.  Thank you for making my impossible dream become real!”

– Eltahir Abdelrahman

We’re honored to have had the opportunity to help provide the gift of hearing to another individual with hearing loss and are thankful for our friends at the Ear Community for sharing Raheeg’s story with us!

If you’d like to learn more about Raheeg and Microtia and Atresia, the Ear Community blog is a great resource!

We’re Celebrating National Microtia Awareness Day

November 9th is dedicated to spreading hope and knowledge around a congenital birth defect, Microtia, microtia-national-awareness-daywhich occurs when the ear has not been fully developed in the first trimester of pregnancy.

Often affecting one or both ears, Microtia is diagnosed at birth, but there is no understanding as to why it occurs. A Microtia ear is smaller in size, can have a peanut shaped appearance, and is often accompanied by Atresia. Atresia, also known as aural atresia, is the absence or closure of the external auditory ear canal.

Microtia occurs in 1 of every 6,000 to 12,000 births, and in some regions, the condition is rare enough that it can be difficult to find relevant information and support. At Oticon Medical, we’re proud to say that our Bone Anchored Hearing System (BAHS) has helped people affected by Microtia and Atresia. As we celebrate Microtia Awareness Day today, we hope to promote public awareness and hope for future generations.

To learn more about Microtia and Atresia and explore helpful resources please visit the Ear Community.
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Getting the Most Out of the Winter Season with A Bone Anchored Hearing System (BAHS)

The winter and holiday season is usually full of fun, family and friends. Today, we’re sharing tips collected from our community to make sure Bone Anchored Hearing System (BAHS) users get the most joy out of winter. From dealing with the noise of large group gatherings to unique winter hats, gear and gifts for family members with hearing loss, here’s what our community had to share.

In her post, “Holiday Madness, Seven Tips to Better Communication” Arlene Romoff shares a great reminder: “Realize that large social groups, especially around a large dining room table, are one of the most difficult environments for a person with a hearing loss.” Penny Feltham took to Twitter to share a great idea about reducing those unnecessary clunks that add to the noise.

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Find the Right Hearing Care Professional for You: Oticon Medical’s Customer Service Team Can Help

You may have seen our new page where you can sign up to get help making an appointment with a hearing care professional in your area. We wanted to take a minute to explain why Oticon Medical offers this service, and what it can do for you or someone you know who’s on the journey of finding the best hearing solution possible.

TreatmentWhen most people start searching for hearing solutions, what they don’t realize is that all clinics don’t offer all of the available solutions. In fact, in some cases, people don’t even know what their options are. They only know what the clinic has offered them. From people who weren’t aware of bone anchored hearing solutions at all, to those who thought only one type of bone anchored hearing solution existed, we hear from a lot of people who have been in this situation. If this is your case, you’re not alone!

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Parents’ Perspective: The Decision Making Process for Bone Anchored Hearing Systems for Children

So often, parents tell us that they wish they would have had a place to learn more about their child’s hearing loss. With learning more, there are also questions: When is the right time to search for a solution? What goes into your child getting a bone anchored hearing system (BAHS)? With an endless number of considerations along the way, it can be a complex journey.

To help answer your questions and introduce you to two parents who have been through the process, on August 25 at 12:00PM EDT, Audiology Online and Oticon Medical will host the live online event Parents’ Perspective: The Decision Making Process for Bone Anchored Hearing Systems for Children.

In this live online event, you’ll hear from Melissa Tumblin and Ann Pipes. Melissa and Ann, who both dedicate their time to helping others seeking hearing solutions and bettering the hearing industry, are both mothers to children who use BAHS.

Meet Melissa and Ann

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Upgrading Your Bone Anchored Hearing System: Why and How

Like most technology, there’s a lot of conversation around the value of making the leap from one product to another—whether it’s moving to the most recently released product within the same brand, or making a larger change by switching from one manufacturer to another. Your hearing, and quality of life, is at stake.

That’s something we take extremely seriously. So, we wanted to give you a more intimate view into why to consider a bone anchored hearing system upgrade and how to go about getting a new bone anchored hearing system.

What’s an upgrade?

First things first, what is considered an upgrade? There are two different types of upgrades: An upgrade from one Ponto model to another—i.e. switching from the Ponto Pro to the Ponto Plus. And, the second, a change from one device provider to another.

An independent study tested the Ponto against similar bone anchored sound processors, and findings show that two out of three prefer the Ponto.

An independent study tested the Ponto against similar bone anchored sound processors, and findings show that two out of three prefer the Ponto.

While this is terminology that we use, we checked in with community members to see if this makes sense from a bone anchored hearing-user perspective too.

“I usually call both upgrades. And if it’s to a different brand, I say something like, ‘for this upgrade, I switched to…’” – Katie Maslar

“I went from the BP110 Power, to the Ponto Plus Power…that was an upgrade, lol! But, in all seriousness…my insurance calls it an upgrade.” – Nancy Smith Oberman

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Lifting up Luca with the Ponto Plus Power

We all want our hopes and dreams to come to fruition, but what happens when they come to fruition before you’re ready? For Anne and Robert Brooks, their hope and dream was to give birth to a baby boy. This aspiration did come true, but too soon—their son, Luca, was born prematurely at 34 weeks.

As a result of the early delivery, Luca was born with, as well as diagnosed post-birth with Branchio-oto-renal syndrome. Anne and Robert with met with an Audiologist and ENT to learn more about Luca’s condition and potential solutions. After learning about all of the hearing solution options, they set out on a long and tiresome quest over the course of a year that consisted of carefully written emails, letters, and marathon phone calls with their insurance provider. Ultimately, this proved to be a fruitless effort, as they were denied coverage.

During this time, they came across Ear Community and learned met many other families who shared their stories and advice.

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