We all want our hopes and dreams to come to fruition, but what happens when they come to fruition before you’re ready? For Anne and Robert Brooks, their hope and dream was to give birth to a baby boy. This aspiration did come true, but too soon—their son, Luca, was born prematurely at 34 weeks.
As a result of the early delivery, Luca was born with, as well as diagnosed post-birth with Branchio-oto-renal syndrome. Anne and Robert with met with an Audiologist and ENT to learn more about Luca’s condition and potential solutions. After learning about all of the hearing solution options, they set out on a long and tiresome quest over the course of a year that consisted of carefully written emails, letters, and marathon phone calls with their insurance provider. Ultimately, this proved to be a fruitless effort, as they were denied coverage.
During this time, they came across Ear Community and learned met many other families who shared their stories and advice.
What does your day-to-day look like? It probably involves waking up, getting ready and going to work or school. In just the first couple hours of the day, there are the sounds of the alarm clock going off, the shower turning on, the coffee machine percolating, the car turning on or the bus pulling up and the hum of traffic.
If you’re like many people, your day also includes some type of activity. Running, riding a bike, and playing sports—all activities in which sound continues to play a crucial role.
Here’s how two of our community members play best with their Pontos.
The Creative Karate Kid
Sonja Herne’s son Jack loves karate, and he wears bilateral Pontos on a softband. When he advanced to a red belt, requiring a helmet during activity, Sonja and Jack got creative. When Jack practices karate, they remove one of his Pontos and shift the other to the back-middle of his head. They found a gap in the back of the helmet, which allows the Ponto to sit unobstructed.
Winslow may only be 7 years old, but he knows what he wants when it comes to his hearing. After trying his options, Winslow chose The Ponto System. This May, Winslow decided he was ready to take the next step and be aided bilaterally. Now, he’ll have not one, but two Pontos.
Here’s Winslow and his mom, Ann, to tell their story.
Would you like to talk to Ann and Winslow or another bone anchored hearing system user? Let us know here. If you’d like to share your story, let us know in the comments below or on Facebook or Twitter.