Tag Archives: children with hearing loss

A ‘super’ day for Kavya Sharma thanks to Ear Community and Oticon Medical donation

Kavya Sharma is almost two years old and lives in New Delhi, India. She had a difficult start in life, being born with bilateral Microtia and Atresia as well as Hemifacial Microsomia and a hole in her heart. These conditions brought her to the hospital often for feeding tubes and oxygen therapy. Today, Kavya has recovered from many of her health related issues, except one – her ability to hear.

In the Spring of 2017, her mother Savita Sharma, reached out to Ear Community looking for help. With bilateral Microtia and Atresia, Kavya struggled with speech development and couldn’t hear her parents. They worried about her ability to make friends and how she would be able to learn and attend school. After consulting with a specialist in New Delhi, it was suggested that a bone conduction device could be the answer.

On June 5, 2017, Kavya received two brand new Ponto 3 SuperPowers from Oticon Medical that were donated through the Ear Community. With the help and donated time of Dr. Niraj Kumar at the AIMS hospital in Safdarjung, Delhi, India Kavya was fitted and now has the auditory tools she needs to move forward.

“This precious little girl has already struggled to get to where she is, and we are thrilled to be able to help her on her journey.” – Melissa Tumblin, Founder of Ear Community.

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Are you interested in learning more about the Ponto 3 SuperPower for yourself or your child? Click below to be connected to a representative from our team.Learn more

Four things I couldn’t hear before my Ponto 3 SuperPower

Since receiving my Ponto 3 SuperPower, walking through life is far more different than I ever could have imagined. It’s often overwhelming to think about all of the different sounds that I can now interpret with ease because of my device.

Below are four of the most noticeable differences in sound that I’ve observed through wearing my Ponto 3 SuperPower.

My own voice:

It may seem silly, but anyone who has worn a Ponto Bone Anchored Hearing System will tell you that the moment they snapped it on, the way they heard their own voices was drastically different. For some, it’s not always the most pleasant surprise. I’ve never been a huge fan of how I sound in recordings that are played back to me, and this sort of sound is how I would describe my voice when listening to it with my Ponto on. Though it may seem jarring at first, it’s really amazing to understand finally how the rest of the world hears you when you speak!

Parts of songs that went unnoticed:

I am a member of a chapel choir at my college, and I tend to sit towards the back of the group with the rest of the men. I’ve always known that our group contained several instrumentalists, but I was never able to fully hear them until now! I have also noticed that I am able to pick apart different aspects of music that I was not able to before. I don’t believe that this is because of an increase in volume, but rather because of an increase in clarity.

Voices in a conference setting:

At school, more often than not, I find myself communicating with me peers in a group setting – a cafeteria, a bustling classroom, a loud dormitory. Before my Ponto, I always had difficulty differentiating voices that were happening all at once. My Ponto helps me not only to separate those voices, but also makes them clearer and more easily understood.

Sounds in nature:

The first time I went on a hike with my Ponto, I was in tears. Turns out, nature is noisy! I have always loved the great outdoors, but the vibrant and amazing sounds were lost to me. With nature, and with everything else, I’ve come to realize that there is so much happening around me that I didn’t know about before I snapped on my Ponto 3 Superpower.

Interested in learning more about our newest Ponto – the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.

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About the author – Kevin Hotaling

After attending Oticon Medical’s patient advocacy event in 2016, I knew I wanted to take action on my advocacy in a new way. I am in awe of the work that Oticon Medical does, and even more so excited by the ways in which the work is done. I’ve always been very adept in social networking and media and knew I wanted to use my skill set in a professional, progressive and communal environment.

‘We wanted the very best’ – a parent’s perspective on choosing the Ponto Bone Anchored Hearing System

Zhou Yu (“Z”) was born with bilateral microtia and atresia. While living in China he was unaided until he was adopted almost 2 years ago by the Bullock family. His mother Erin began doing research regarding what the best hearing care options would be for Z, knowing he would have progress to make not only learning a new language but hearing for the first time.

“It was not a hard decision to make once we did all the research. The stories that adults and older children were telling were the stories we needed to here. When we demoed products, he even could tell the difference and he picked Ponto” – Erin

In the video below, Erin explains why her family chose Ponto and the difference it is making in her son Z’s life.

Interested in learning more about our newest Ponto – the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.

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Persistence pays off for a Ponto mom

Rachel and her son Maxwell have come a long way in the last year in finding the right hearing device to alleviate his hearing loss. Maxwell was born without an ear canal, and at nine months old his mother Rachel fought to find the right hearing solution for her son.

However, when Maxwell received his Ponto on a softband, a new struggle emerged.

Maxwell didn’t keep it on. It went straight to his mouth. I felt selfish for accepting this. I started to feel guilty. What if he never wore it?

Rachel was struggling with what many parents of young softband users struggle with—keeping the Ponto on their child’s head and out of their mouth.

Her solution? “Ponto time!” Every day Rachel would cheerfully tell Maxwell it was “Ponto time,” and for five minutes she’d work with him to keep his Ponto on.

Her persistence has paid off.

He just turned a year, and he LOVES his Ponto. He wears it all the time without messing with it. I don’t need to monitor him anymore. He plays independently with it on.

Rachel’s advice to other parents struggling to keep their children wearing their Pontos – don’t give up!

If your little one is struggling or goes through a regression phase, it will get better! They will soon understand what this beautiful device provides!

The new Ponto Softband is now available for purchase in our Webshop! I

If you’d like to learn more about how the Softband can provide early support for children with hearing loss, you can click here to speak to a representative.

The Journey to the Best Hearing in the Classroom

Many of our Ponto users who are children have experienced positive change, particularly in the classroom. If you’re considering aiding your child with a hearing device it’s important to understand how louder environments, like classrooms or playgrounds, can affect a hearing device.

Melissa Tumblin, founder of Ear Community, whose daughter Ally is a Ponto user shares some great insight on setting your child up for success in the classroom.

Ally Tumblin wearing her Ponto Plus on a Softband

Ally has a severe hearing loss in her right ear (65dB-70dB). She was tested at a 65dB hearing
loss yesterday. Ally was tested while wearing her BAHS (Ponto Plus) made by Oticon Medical in the booth and her hearing with the hearing device is brought back up to the normal hearing range (between 15dB to 20dB)….which has been the norm for us over the years with her testing and Ponto.

However, this time the audiologist chose to include noise interference in the sound booth – lots of background noise to see how well Ally could hear and covered her mouth when saying words and sentences to Ally, asking her to repeat them back to her. Well, even when aided, her hearing dropped to 56% (when it was in the normal hearing range without background noise) because of all of the noise. But then, the audiologist added Ally’s FM system back in and also removed the card from her mouth so Ally could see her lips when she spoke to her and her hearing response went back up to 96%! (which is great!)

So, the lesson learned here for those of you who are considering aiding your child (or yourself) with a hearing device is that hearing devices help amplify sound and help make things louder, so you can hear better. When extra noise is added to your daily activities, it can still be difficult to hear everything. However, when you combine an FM system (such as to help your child hear better in the school classroom), and your child is being taught how to be a “visual” learner and be aware to always be looking, watching and reading lips, then together….all of these things help optimize your child’s maximum potential to hear his/her very best.

I see such a difference with her and her Ponto, every day! Thank you Oticon Medical! Thank you for helping my daughter hear her best with her Ponto Plus!

Want to learn more about our newest addition to the Ponto family of processors? Click the button below to be connected to a representative from our team.

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The sweetest sound for both mother and daughter

We’re thrilled to share a sweet and inspiring moment between mother and daughter as Teyana Gladden hears her own voice—and her mother’s—clearly for the first time, thanks to a Ponto softband.

Her mother, in awe, mentioned, “She’s talking softer”. To comfort her, Teyana whispers in her new heard voice, “It’s ok mama”.

You can read more about Teyana in this heartwarming story from The Daily Mail, and see the video of Teyana’s first moments of clear hearing. The video quickly went viral and we can see why!

We’re wishing all the best to Teyana and her family!

Interested in learning more about the newest Ponto system? Click the button below to be connected to a representative from our team.

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“We’re Just Trying To Do What’s Best for Him” – A Parent’s Perspective

Davin is 8 years old and was born with bilateral microtia and atresia. In the video below, Davin and his mother, Shannon Gordon, talk about his hearing journey with his Ponto’s and their experience with the new Ponto 3 SuperPower.

“Davin’s hearing is one of the most important things in our life and we’re just trying to do what’s best for him.” – Shannon

Interested in learning more about the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.

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The Gift of Hearing Travels to Africa

We’d like to introduce you to someone very special!

Meet Raheeg Abdelrahman, a four-year-old girl living in Sudan with her younger twin siblings, her mother, and her father, Eltahir.

Raheeg was born with bilateral Microtia and Atresia, and when her family couldn’t find a suitable hearing device in Sudan, they traveled to Egypt to meet with an audiologist who they hoped could help them find a solution. Unfortunately, the family was unable to find an affordable solution and were forced to return home without a device for Raheeg.

That’s when we heard about Raheeg and her family through our friends at the Ear Community and partnered with them to provide two Oticon Medical Ponto Plus hearing devices for her.

The devices were sent to Egypt where Raheeg was fitted with her devices with great results:

 “She can answer our call easily and surely this will help her to receive her lessons like other kids…it is difficult to get words to express my thanks but I say God bless you!

Please convey my deepest heartfelt thanks and appreciation to all of Oticon Medical staff for the help and support they provide to everybody in our Ear Community, and special thanks for Mr. Alan Raffauf, Tove Rosenbom, and Claus Frees Horneman…THANKS to YOU dear friends for giving me hope that my daughter can go to school, hearing sounds and practice her life like other kids.  Thank you for making my impossible dream become real!”

– Eltahir Abdelrahman

We’re honored to have had the opportunity to help provide the gift of hearing to another individual with hearing loss and are thankful for our friends at the Ear Community for sharing Raheeg’s story with us!

If you’d like to learn more about Raheeg and Microtia and Atresia, the Ear Community blog is a great resource!

We’re Celebrating National Microtia Awareness Day

November 9th is dedicated to spreading hope and knowledge around a congenital birth defect, Microtia, microtia-national-awareness-daywhich occurs when the ear has not been fully developed in the first trimester of pregnancy.

Often affecting one or both ears, Microtia is diagnosed at birth, but there is no understanding as to why it occurs. A Microtia ear is smaller in size, can have a peanut shaped appearance, and is often accompanied by Atresia. Atresia, also known as aural atresia, is the absence or closure of the external auditory ear canal.

Microtia occurs in 1 of every 6,000 to 12,000 births, and in some regions, the condition is rare enough that it can be difficult to find relevant information and support. At Oticon Medical, we’re proud to say that our Bone Anchored Hearing System (BAHS) has helped people affected by Microtia and Atresia. As we celebrate Microtia Awareness Day today, we hope to promote public awareness and hope for future generations.

To learn more about Microtia and Atresia and explore helpful resources please visit the Ear Community.
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Superhero Praise for the Ponto 3 SuperPower

davin

We first met Shannon and her son Davin after she posted a video of him wearing his Ponto Pluses on abutments for the first time.

It was so loud and I loved it! – Davin

 

 

 

At the Oticon Medical Patient Advocacy Workshop Davin was able to try our upcoming product, the Ponto 3 SuperPower. His mom said, “He didn’t want to give it back,” and in the video below, Davin shares his experience with his dad:

 

Shannon also shared the experience she and Davin had attending the Oticon Medical Patient Advocacy Workshop:

Over 8 1/2 years ago Davin was born, a day that was supposed to be one of the happiest days of my life…wasn’t, it was the scariest….as some of you know, we had such a traumatic delivery and as a result, he was born unconscious. After he finally started to cry they brought him to us. We were told he didn’t have ears or ear canals, he was deaf and would NEVER hear, he would be a “deaf mute” and NEVER talk, he had a cleft palate….oh then a few hours after he was born we were told “I’m sorry but Davin’s skull was fractured during delivery and he needs surgery to lift his skull off of his brain because it is pressing on his brain and hemorrhaging”. Who would’ve thought that the scariest day of my life would bring me such joy over the years.

Because of Davin, over the last 8 1/2 years I have met some of the most amazing people that I never would have ever had the privilege of meeting. This past weekend was one of those times. We were invited to the Oticon Medical Patient Advocacy Workshop. What an experience. I learned a whole lot, was finally able to meet some of my friends and part of my support system in person, along with making new friends who get it. Davin had the opportunity to try out the newest device that’s not even available yet. He was able to meet and hang out with other people, of all ages, who wear the same hearing devices as him, making new friends. The smile on his face and joy he expressed was one of the best experiences I have ever had. It was such an amazing experience for him…and me. I cried many tears, laughed a lot and had such a great time.

All of this was possible because of the company the makes Davin’s hearing aids. Oticon Medical truly cares!! They are top notch in customer service and are like family. So thankful to have met so many from Oticon and to put faces to names. I am truly blessed and so thankful for this opportunity. Thank you Oticon Medical! You have fans, friends, and family for life here! Love my Ponto Family! 

-Shannon Gordon

Looking to try a Ponto for the first time? Sign up to get more information about the SuperPower here.

Do you already have a Ponto and are interested in upgrading? Here’s where you can learn about our special offer here.