Tag Archives: children with hearing loss

Advocating for a better solution – Dominic’s journey to the Ponto 3 SuperPower

When Caroline Mannato’s son, Dominic, was born with unilateral microtia and atresia she worked with her audiologist to quickly have him aided with a bone anchored hearing system (BAHS). At six months old, he received his first BAHS, however, acoustical feedback was a constant issue.

“He has curly hair and the curls kept hitting the device and just from his hair, it would create feedback. It was constantly buzzing. I realized within the first few weeks this was not acceptable.” – Caroline Mannato

Caroline enrolled her son in an early intervention program to do monthly speech evaluations and through this program, she was able to connect with another mother whose daughter also had microtia and atresia.

“I invited her over for coffee and she brought her daughter’s Ponto device. I mentioned my feedback issues and she said they hadn’t experienced any. We compared my device to hers and I asked her ‘how do you turn it on’. She said it was on – it wasn’t vibrating or making any noise. I had mixed emotions thinking ‘why don’t I have this for my child’.” – Caroline Mannato

The Mannato family began researching and going to hearing events around the country trying to educate themselves on all available options. From Ear Community picnics to the Earicles Microtia Atresia Conference in California, and Vanderbilt Microtia and Atresia Clinic in Tennessee, Caroline specifically sought out adults who were BAHS users to speak to. She found that many adults had started with other BAHS’s and eventually switched to the Oticon Medical Ponto. It was these patient interactions and stories that confirmed for Caroline that Dominic needed the Ponto Bone Anchored Hearing System.

Dominic received the Ponto 3 SuperPower and was the first person programmed with a Ponto device at UNC-Chapel Hill. The results since then have been night and day.

“When we take it off, he points at it and he wants it. Then you put it on him and he smiles. Leaving the house is less of a hassle too now. I don’t have to take it off and put it back on him to prevent feedback. When it’s on, it’s on.” – Caroline Mannato

To other parents who are also on the journey of finding the best hearing option for their child, Caroline’s advice is research, because you have options.

 

If you’d like to learn more about the latest Ponto device – Ponto 3 SuperPower – click below to be connected with an audiologist. 

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From fearful to fearless – how advocacy helped Cierra McCorkell receive her abutment surgery

Cierra McCorkell was born with bilateral hearing loss with microtia and atresia on the left side.

She received her first Ponto Bone Anchored Hearing device in 2012 when she was in 6th grade after her hearing loss had progressed. She began wearing a Ponto Pro on a headband and continued with the headband until she was in high school. When discussing the possibility of surgery, she found the decision overwhelming, and surgery was a frightening thought.

“Just the word alone made her afraid. I have always let her choose for herself when she is ready to do something so this decision was solely on her.” – Theresa McCorkell

While researching bone anchored hearing, Cierra’s mother Theresa found the blog of a Ponto advocate who had written about her recent surgery to have her abutment placed. Theresa commented that her daughter was afraid of the surgery which sparked an online conversation that would lead Theresa and Cierra to Oticon Medical’s annual patient advocacy conference to learn more about the procedure.

Overcoming a fear of surgery
In October of 2016, Cierra and her mother attended the Oticon Medical Patient Advocacy Workshop. It was there, among fellow Ponto users, that Cierra expressed her fear of surgery and where she learned first hand about the Minimally Invasive Ponto Surgery (MIPS) procedure.

“She had never met anyone like her. But now she saw other children and adults who were doing great with the surgery and that helped her a lot. Cierra was nervous because she doesn’t talk about her hearing loss and we didn’t know what to expect. We had a great time and we learned a lot. She made friends and it opened up a whole new conversation for her to learn how to advocate for herself now that she is getting older.” – Theresa McCorkell

On the last day of the conference, Cierra announced that she had made the decision to move forward with abutment surgery thanks to the stories and information provided by fellow advocates.

Surgery and activation
On September 1, 2017, Cierra was implanted using the MIPS procedure. Her mother comments that the surgery was less than an hour and without complications. Four months after her abutment was placed, Cierra was finally able to snap on her Ponto Pro, which her mother captured in the video below.

 

“Ultimately, what helped was knowing there are people just like her out there.” – Theresa McCorkell

If you’d like to learn more about the latest Ponto device – Ponto 3 SuperPower, click below to be connected with an audiologist.

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Powerful sound: How the Ponto 3 SuperPower is making a difference for these Ponto families

This past October, we sat down with parents of children who use the Ponto bone anchored hearing system and asked them about three important aspects of the bone anchored hearing experience – the power of choice, discovering the difference, and powerful sound.

Powerful sound

The Ponto 3 SuperPower gives premium sound quality, as well as helps reduce the effort spent on listening. Loud sounds remain loud but not distorted, and softer sounds are audible.

When there are conversations and background noise, your brain has to work harder to make sense of the sounds it hears, which can leave you or your child feeling drained.The Ponto 3 SuperPower helps reduce the extra listening effort the brain expends to compensate for a hearing loss, freeing up mental energy for more important things in life.

In the video below, these families share their experiences with the Ponto 3 SuperPower and how the sound quality has made a difference in their children’s lives.

 

Interested in learning more about the Ponto 3 SuperPower as a possible hearing solution for your child? Click below to be connected to an audiologist.

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Discover the difference: The importance of trying different bone anchored hearing devices and why these families chose Ponto

This past October, we sat down with parents of children who use the Ponto Bone Anchored Hearing System and asked them about three important aspects of the bone anchored hearing experience – the power of choice, discovering the difference, and powerful sound.

Try and discover the difference 

In the video below learn how important it is to demo different devices and how these parents discovered the difference with Ponto by doing so.

 

Interested in the Ponto 3 SuperPower as a possible hearing solution for your child? Click below to learn more.

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Powerful choice: Why these parents chose the Ponto 3 SuperPower for their children

This past October, we sat down with parents of children who use the Ponto Bone Anchored Hearing System and asked them about three important aspects of the bone anchored hearing experience – the power of choice, discovering the difference, and powerful sound.

Choice – you have options

There are options when it comes to bone anchored hearing, and these families have learned about their choices through online support groups such as this one and this one, research and advocacy. 

In the videos below, two families share their experiences of looking for the right hearing solution and choosing Ponto. We hope their stories empower you to find the solution that’s right for your child.

Interested in the Ponto 3 SuperPower as a possible hearing solution for your child? Click below to learn more.

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Nathan’s journey to his Ponto 3 SuperPower

Nathan Anderson is 7-years-old. He was born with Treacher Collins syndrome and bilateral conductive hearing loss. His hearing journey began when he was 6 months old with a bone anchored hearing system (BAHS) on a softband.

While his mother, Liz Anderson, was happy her son had the device, they were never happy with the feedback that occurred when someone or something would come in contact with it. Through online communities such as the “BAHA Kids Club World Hearing”, Liz began to learn about other bone anchored hearing options and came across Oticon Medical and the Ponto.

When it came time to decide whether or not he would continue with his device on a softband, Nathan who prior to his BAHS surgeries had had 7 other medical procedures, was unsure about the decision. He spoke with a friend who had gone from a softband to an abutment and received reassurance that the surgery was an easy process.

“When it came time for deciding on whether or not to have surgery for implantation, Nathan made the decision himself. One day at the dinner table, he let us know he was ready.”

In the video below, Nathan’s Ponto 3 SuperPowers are activated!

 

“When I saw videos of adults trying the new Ponto 3 SuperPower, it helped me make the decision that that was the direction we wanted to go. The clarity that people spoke of and children in middle school spoke about trying different BAHS devices but ultimately chose Ponto – that cemented our decision.”

Interested in learning more about our newest Ponto – the Ponto 3 SuperPower? Click the button below to be connected to a representative from our team.
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The Ponto 3 Power Makes a Powerful Difference in Nicaragua

Nicaragua is the largest country in Central America with a population of over 6 million people. According to the Carlyle Hearing Center, it is estimated that 10% of the Nicaraguan population has a severe to profound hearing loss, pointing to a count of 600,000 people.

Sherry Rauh is a former medical journalist. After becoming intrigued by implantable hearing technology, she went back to school and to earn her AuD from Nova Southeastern University in 2015. She is now a clinical audiologist with South Florida ENT Associates and the co-founder of Hear for Good, Inc., a nonprofit foundation dedicated to helping adults and children with hearing loss in South Florida and Nicaragua.

Hearing Aids for Nicaraguan Students (HANS)

Kamilla, age 7

In 2014, Dr. Rauh organized a joint project between Nova Southeastern University’s (NSU) Student Academy of Audiology and the Los Pipitos Institute in Managua, Nicaragua to provide hearing aids to children.

“I had been to Nicaragua the previous year and saw how they were identifying many children with hearing loss at a young age, but had limited resources for intervention.”

In 2015, the HANS Project received a grant from the Hear the World Foundation providing BTE hearing aids for the next 5 years. Dr. Rauh now travels to Nicaragua every year with a small group of audiology students from NSU, to fit new hearing aid devices and provide followup to previous patients, while Los Pipitos provides check-ups and speech therapy.

“It’s really important to me that whichever children we do fit with hearing aids we are able to provide them with sufficient follow-up care.”

Providing Bone Conduction Hearing Devices in Nicaragua

Anselyn, age 1

As Dr. Rauh’s organization has grown, her partners in Nicaragua began asking what could be done for children with microtia and atresia, who cannot use conventional hearing aids for their hearing loss. She reached out to Oticon Medical and her local representative, Brittany Whitlock, who provided two demo units which were fit with soft-bands. Oticon Medical then made an official donation of four Ponto 3 Power units for her trip her most recent trip this October.

“While we have the BTE hearing aids, there are children who can’t use those and to be able to extend assistance to those children meant a lot to our team, the team in Nicaragua, and the families.”

Frander, age 7 months

 

With the continued work of the Hear for Good foundation and Los Pipitos, children in Nicaragua with different hearing needs are not only being fit with hearing devices, but receiving the proper follow-up, and care throughout their lives. When asked why this work is important to her, Dr. Rauh said, “There are so many countries where there is very little, to no access to audiologists, so part of me feels like we have a responsibility to provide that assistance. But I also get a lot of personal joy making these trips and seeing the difference we are making.”

 

Naven thrives with the help of his Ponto 3 and Ear Community

Naven Ramirez, BMA age 5 of the Philippines, receives (2) newly donated Oticon Medical Ponto 3’s on October 6th, 2017

Naven R. Osic is a five-year-old boy from the Philippines who was born with bilateral Microtia and Atresia. After learning that her son was born missing both his ears, Naven’s mother Donna, worried about how he would adjust to life and what impact this hearing loss would have on him. As Naven got older and began attending a daycare school, he struggled to hear his teachers, keep up with lessons, and make friends.

Donna decided to take action and meet with an ENT at the Philippine General Hospital (PGH) where she received heartbreaking news – without the appropriate hearing device, Naven’s speech, and hearing would continue to decline and he would continue to struggle socially and academically. Further testing showed that Naven had moderate to severe conductive hearing loss and would need bilateral bone conduction devices to help him hear.

Seeking assistance, Naven’s audiologists reached out to Ear Community and on October 6, 2017 he was fitted with two brand new Oticon Medical Ponto 3 hearing devices, donated through Ear Community. Naven now has the auditory tools he needs to thrive and hear his best. 

Naven now is very happy, he clearly hear(s) what we are saying. He can easily keep up (with) the lesson when he is at school – Donna

To read the full story, visit Ear Community and learn more.

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Are you interested in learning about the Ponto 3 SuperPower for yourself or your child? Click below to be connected to a representative from our team.

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Learn how Heidi Jeffs chose the Ponto 3 for her daughter Rosalee and became an advocate in the hearing loss community

We hear time and time again from parents of Ponto users that doing research into all the hearing options available is the best way to make the most informed decision. For Heidi Jeffs, research into different hearing groups is what led her to not only find the best hearing solution for her five-year-old daughter Rosalee but become an advocate in the hearing loss community.

Rosalee was born with microtia and atresia on her left side and fit with a bone anchored hearing device on a soft band given to her by her audiologist.

“We met with our audiologist and wanted her to have a device. We didn’t know any different or know of other options.”

Shortly after, Heidi learned about Ear Community, a non-profit organization that offers a supportive community for individuals born with microtia and atresia, and other varying degrees of hearing loss.

The community, which was started by Melissa Tumblin whose daughter Ally was born with microtia and atresia, provides support through their online Facebook group as well as annual picnics around the country.

Through her involvement with Ear Community, Heidi began meeting other parents and bone anchored hearing system (BAHS) users and found that feedback was a common issue.

“We were having a lot of feedback issues. Some moms were commiserating about it and then there was one mom whose daughter had bilateral Pontos and she was like ‘what are you guys talking about?’ The woman said her daughter could lay on a pillow with her Pontos on and it wouldn’t squeal. So I started looking into the Ponto devices.”

The Ear Community picnics were where Heidi became familiar with Oticon Medical and her daughter was able to try on a Ponto device for the first time.

“It didn’t sound echoey. It was just clear. I was flat out convinced. Then the more and more that I learned about the company I was even more impressed. It really felt like Oticon Medical stood by their motto ‘People First’.”

When it was time for Rosalee to upgrade, she tested the Ponto 3 on a softband and said yes to switching to the Ponto. Heidi notes that before, it was difficult to get Rosalee to wear her device, but since switching she hasn’t complained once about the softband being uncomfortable or sore, making the transition very easy and enjoyable.

“Between the quality of products and the integrity of the company, it is so far above the others out there.

Since beginning this hearing care journey with her daughter, Heidi has served on the board of Ear Community for three years and is now a full-time staff member. Additionally, she served on the board for the Idaho Council for the Deaf and Hard of Hearing and was chosen as a parent representative for Idaho to attend the EHDI conference – an early hearing detection and intervention event. To all parents looking to learn about hearing options for themselves or their child with hearing loss, she recommends trying all your options, on your child and yourself, to help you make the best decision for your family.

 

Are you interested in learning about the Ponto 3 SuperPower and how it can provide early support for children and adults with hearing loss? Click below to be connected to a representative from our team.

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“I kindly demanded an upgrade” – How Jillian, Hazel’s mother, advocated for Hazel to get a Ponto 3 SuperPower

Hazel Shelton was born with bilateral Microtia and moderate mixed hearing loss. She was unaided until she was 18 months and adopted by the Shelton family. After trying a number of hearing devices and experiencing issues with feedback, her mother Jillian decided to conduct her own research and become an advocate for her daughter.

She began speaking to other bone anchored hearing system users online and in a number of Facebook groups which is where she learned about the Ponto 3 SuperPower.

“I watched a video of a daughter laying in her mother’s arms wearing the Ponto and there was no feedback. I started to look in the Facebook groups and hands down, Ponto won.”

Jillian traveled to California to attend the Earicles Los Angeles Microtia Atresia conference to take her research further. After meeting with a number of doctors and experts, she returned home and “kindly demanded” an upgrade for her daughter.

Hazel has now been using her Ponto 3 SuperPower on a softband for two weeks. In the video below, Jillian demonstrates just how big of a difference her Ponto is making in her life.

“My daughter’s sentences have exploded. Not just one or two words but sentences and she’s only had them on for two weeks! The feedback is not there – when she gives me a hug, sits in her car seat, or wears her hair down. She grabs the Ponto first thing in the morning and wears it until she falls asleep at night. Hands down, Ponto is the way to go.”

If you’d like to learn more about how the Ponto 3 SuperPower can provide early support for children and adults with hearing loss, click below to be connected to a representative from our team.

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