Tag Archives: children with hearing loss

The Ponto 3 SuperPower spurs a 180 degree change for Amelia

Allison and Amelia

Allison Richardson’s three-year-old daughter, Amelia, was born with Auditory Neuropathy Spectrum Disorder and has severe-profound unilateral hearing loss. At the time of Amelia’s diagnosis, family members and doctors advised her not to worry. But with three of Amelia’s older brothers diagnosed with Apraxia, a speech sound disorder, Allison knew the importance speech and hearing was to development.

While pregnant in 2009 with one of her sons, Allison began joining groups on Facebook for parents. She found these to be supportive networks where she could turn to for help and develop friendships. Once Amelia was born, she set out to find a Facebook group for parents of children with hearing loss, which is where she found the “BAHA Kids Club” Facebook group.

After learning about bone-anchored hearing systems (BAHS) and doing her own research, Allison brought Amelia to her ENT’s office to inquire about a BAHS. After learning the pros and cons of different devices, the personal stories of parents online, and about feedback and Oticon Medical’s great customer service, they advocated for a year-and-a-half to secure a device for Amelia.

180 degree difference with Ponto

Life for Amelia changed after being fit with the Oticon Medical Ponto 3 SuperPower. “She went from being an unfocused child speaking no more than five words to a focused student and dancer who now talks more than anyone at home. Her five older brothers say that Amelia has a bionic ear,” Allison said.

Amelia currently attends preschool and sits in a classroom with special needs and non-special needs students. The mix, Allison noted, provides special needs kids with mentors, and teaches non-special needs kids acceptance.

Amelia Richardson

Advice for parents

Allison’s advice is simple when it comes to making a medical decision for your child: “Go with your gut and don’t compare kids”.

She continued, “Do what you think is best for your child, not what other people say is best, because you know your child.”

The journey to better hearing and finding the right hearing device for your child’s individual hearing loss can be long and sometimes feel like a never-ending waiting game. Continue to advocate for yourself and your child, reach out to online support groups, try all your options, and as Allison reminded us, “Don’t give up.”

To learn more about the Ponto 3 SuperPower and be connected with our team, click below:

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Ear Community goes to Washington with Ponto SuperPowers

Advocacy Day 2019

On February 26, Ear Community was invited to be a part of the 2019 Advocacy Day on Capitol Hill.  This annual event invites advocates on behalf of dental, oral, and craniofacial research to speak directly with federal policymakers about how insurance coverage and research funding would improve the lives of those living with these conditions.

Organizer Melissa Tumblin founded Ear Community and has a daughter, Ally, with Microtia and Atresia who wears a bone-anchored hearing system (BAHS). Melissa was able to arrange the meetings with House and Senate representatives because she sits on the Patient Advocacy Council for the National Institute of Dental and Craniofacial Research (NIDCR).

Melissa and Ally were accompanied by eight other Ear Community families, including one medical doctor, to Washington, D.C. representing the states of Washington, Colorado, Tennessee, Maryland, and Virginia.

Lobbying on behalf of families living with hearing loss and related conditions

On Monday, February 25, Melissa met with directors from the National Institute of Health representing the NIDCR, American Association for Dental Research (AADR), and International Association for Dental Research (IADR) to discuss collaborative efforts regarding children and adults affected by craniofacial challenges due to Microtia and Atresia and Goldenhar Syndrome.

The next day, the Ear Community families met with the following representatives and staff members on Capitol Hill:

  • Staff members for Senator Lamar Alexander’s (R-TN) office
  • Legislative staff members for Congressman Joe Neguse’s (D-CO), Senator Cory Gardner’s (R-CO), and Michael Bennet’s (D-CO) offices.
  • Legislative staff members for Senator Chris Van Hollen (D-MD), and office staff for Congressman John Sarbanes’ (D-MD) and Senator Ben Cardin’s (D-MD).
  • Legislative staff and the press secretary for Congressman Denny Heck’s (D-WA) office and an Appropriations representative for the NIH staff for Senator Patty Murray’s (D-WA) office.
  • Senator Tim Kaine (D-VA), Congresswoman Abigail Spanberger (D-VA), and legislative staff members for Senator Mark Warner (D-VA) and Congressman Ben Cline (R-VA). Sen. Kaine was celebrating his birthday and signed a little girl with Microtia and Atresia named Mazie’s cast. Both Sen. Kaine and Rep. Spanberger tweeted about the Ear Community visit.

Sen. Mark Werner and Ear Community FamiliesRep. Spanberger with members of Ear Community

Melissa also scheduled phone meetings with Congressman David McKinley (R-WV) and Congressman Michael Thompson (D-CA), as they both serve as co-chairs of the Congressional Hearing Health Caucus. Rep. McKinley is a cochlear implant user, and his grandson wears a bone-anchored hearing aid.

Each family left behind a detailed packet of information with the story of the Ear Community organization, an explanation about the need to wear bone-anchored hearing systems, and a sample of anaudiogram along with other helpful facts and figures. Each family explained to legislators and their staff that a bone-anchored device is their only option, because they don’t have the same hearing challenges that qualify others to wear cochlear implants or benefit from traditional hearing aids. Therefore, wearers need lawmakers to work toward mandating bone-conduction hearing device coverage by insurers nationwide. Otherwise, insurance companies are effectively discriminating against thousands of children and adults with hearing loss by not covering these medical devices.

A Stranger Things star gives back

Gaten Matarazzo poses with Ear Community kids for Advocacy Day 2019.

The Ear Community families also received an exciting treat: thanks to the NIDCR and AADR, they were given the opportunity to meet actor Gaten Matarazzo from the hit TV show Stranger Things! He was part of the Advocacy Day non-profit organization lobbying to bring awareness to Cleidocranial dysplasia (CCD), a rare genetic mutation affecting the growth and development of teeth and bones.

Melissa expressed her appreciation to Oticon Medical for lending her two Ponto 3 SuperPower BAHS on soft bands. During her visits, representatives tried on the Pontos and listened to her talk during their meetings, so they could experience for themselves what it’s like to hear through bone-anchored devices.

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Ear Community hosts a series of picnics where Microtia and Atresia families can learn more about Oticon Medical’s Ponto 3 SuperPower. Please click through this link for the 2019 picnic schedule.

Ready to try your first Ponto BAHS or upgrade to our latest Ponto 3 model? Click below to get in touch with an audiologist in your area who can help you choose the best option for your hearing needs.

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SuperNOVA receives super hearing from her Ponto 3 SuperPowers

Nova Cox

Pfeiffer Syndrome is a craniofacial disorder that affects one in every 100,000 people and impacts the way bones grow. Nine-year-old Nova Cox was born with Pfeiffer Syndrome, and in her case her head, neck, and arms have been affected resulting in hearing loss in both ears.

Because hearing loss is common with Pfeiffer Syndrome, her parents Elizabeth (Liz) and Jason connected with other families, utilized Facebook groups for bone conduction wearers, researched online, and consulted their audiologist before Nova was fit with a bone-anchored hearing system (BAHS) on a softband.  

That’s a new sound

After wearing a bone-anchored hearing device on a softband for 7.5 years, Nova began advocating for abutment surgery. After doing research with her family, they consulted an audiologist and were able to try on different types of BAHS before her surgery.

“Nova made the decision to have the implant surgery and was able to ask her questions and be a part of the decision-making process. When she learned more about it she advocated for it and we moved forward when she was ready. When she tried on the Ponto, she didn’t want to take it off,” Liz explained.

Nova chose the Ponto bone-anchored hearing system because she experienced less feedback and better sound quality after trying different devices. She had bilateral abutment surgery and was fit with two Ponto 3 SuperPowers. On the day her Pontos were programmed it was raining and her mom recalls she asked, “Does the rain always sound like this?”. Nova’s parents knew they had made the right decision and for the first few weeks of having her Pontos on abutments they liked to play a game called That’s a new sound, where Nova shared new sounds she was experiencing.

Life with Ponto

It’s been a year since Nova’s bilateral abutment surgery. Today, she is a fierce and mighty force of nature advocating for herself, her health, and her life as an active kid.

She says she loves her Ponto BAHS and enjoys using the Oticon Medical Streamer in class and when she’s in the hospital so she can watch movies to pass the time. And like lots of kids her age she likes Legos, Star Wars and Pokemon and spends her free time playing music, soccer, Taekwondo, and watching movies with friends.

Nova hiking

Nova practicing Taekwondo

Empowered to tell her story

Inspired to share her story especially with young children, Nova created the video below as she was preparing to give a talk in Washington, DC advocating for high-quality accessible healthcare for children.

SuperNOVA: A Tiny Film

Advice to others

Nova and her family have learned a lot in just nine years. A few important pieces of advice that they want to share with other families is to try multiple hearing devices in order to find the right solution and make decisions when the time is right for you or your child. As for Nova, she has the best advice — “Judge Less, Love More”.

To learn more about the Ponto 3 SuperPower and be connected with our team click below:

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Learning Faster: Why It Matters

In our previous blog post, we discussed BrainHearing™ — the term we at Oticon Medical use when referring to how the vital elements of hearing (processing and comprehension) occur in the brain. We also reviewed the evidence showing how our Ponto™ system supports sound processing that enables wearers to learn faster[1], remember more[2], and experience less listening effort[3]. In this post we’re going to delve deeper into how our bone-anchored hearing system (BAHS) helps wearers, especially children, learn faster and why that is important to their development.

The study and its results summed up

To review, Professor Andrea Pittman studied 17 preteen children, 16 of whom have conductive hearing loss and one with single-sided deafness (SSD) The children wore two Ponto Power at a time: one optimally fitted on a softband and one on an abutment. The children had to learn six new words and Dr. Pittman counted the number of repetitions it took to do so. The children performed the learning task twice (with different words), where only one sound processor was activated at a time in a randomized, single-blind manner (i.e., the subjects didn’t know which sound processor was active).

While the kids required approximately 166 trials to learn the words when wearing their Pontos affixed by softbands, they only needed 60 trials when wearing the devices attached to abutments — a 2.5 times increase in learning speed.

Faster learning supports better education and social development

When it comes to education and social development, language acquisition plays a significant role. To learn how to speak, read, and write on pace with their hearing peers, hard-of-hearing children need the best available assistance to improve their hearing ability as early in their lives as possible.

Babies and toddlers initially acquire language by hearing their parents speak. Their linguistic comprehension increases exponentially as they grow and interact more with other adults and peers especially once they start school. During the critical school age years, kids who cannot hear clearly often struggle to increase their vocabulary because it is hard to process and understand spoken language[4].

Consider this: even children with perfect hearing have difficulty paying attention in school. They often are expected to absorb lessons while straining to hear over background chatter, sitting far away from the teacher, and poor classroom acoustics. Now imagine trying to learn despite all this and having a significant hearing loss. It’s no surprise hard-of-hearing children[5] often return home from school feeling frustrated, exhausted, and overwhelmed.

Difficulty to learn at the same rate as others can also lead to youngsters falling behind or even in being held back a grade[6]. For kids who may already feel isolated by their hearing loss, this further separation from same-age peers can significantly impede their social development.

With all this in mind, it’s no surprise that many of these children develop a negative attitude toward school. Many doubt their own learning capabilities and struggle to fit in socially. But it doesn’t have to be that way.

Helping kids with hearing loss succeed

By utilizing a Ponto as early in life as possible, your child can experience the regular stimulation of incoming sound needed to help the brain as much as possible. When worn implanted on an abutment, this powerful BAHS may help keep children learning at a rate closer to that of their natural hearing peers.

Are you ready to try a Ponto for the first time or upgrade to our latest Ponto 3 model? Click below to get in touch with an audiologist in your area who can help you choose the best option for you or your child’s hearing needs.

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[1] Pittman, A. L. (2019) Bone conduction amplification in children: Stimulation via a percutaneous abutment vs. a transcutaneous softband. Ear Hear.
[2] Lunner, T., Rudner, M., Rosenbom, T., Ågren, J., and Ng, E.H.N. (2016) Using Speech Recall in Hearing Aid Fitting and Outcome Evaluation Under Ecological Test Conditions. Ear Hear 37 Suppl 1: 145S-154S.
[3] Bianchi, F., Wendt, D., Wassard, C., Maas, P., Lunner, T., Rosenbom, T., and Holmberg, M. (2019) Benefit of higher maximum force output on listening effort in bone-anchored hearing system users: a pupillometry study. Ear Hear.
[4] Committee on the Evaluation of the Supplemental Security Income (SSI) Disability Program for Children with Speech Disorders and Language Disorders; Board on the Health of Select Populations; Board on Children, Youth, and Families; Institute of Medicine; Division of Behavioral and Social Sciences and Education; National Academies of Sciences, Engineering, and Medicine; Rosenbaum S, Simon P, editors. Speech and Language Disorders in Children: Implications for the Social Security Administration’s Supplemental Security Income Program. Washington (DC): National Academies Press (US); 2016 Apr 6. 2, Childhood Speech and Language Disorders in the General U.S. Population. Available from: https://www.ncbi.nlm.nih.gov/books/NBK356270/
[5] Colquitt JL, Jones J, Harris P, et al. Bone-Anchored Hearing Aids (BAHAs) for People who are Bilaterally Deaf: A Systematic Review and Economic Evaluation. Southampton (UK): NIHR Journals Library; 2011 Jul. (Health Technology Assessment, No. 15.26.) 1, Aim and background. Available from: https://www.ncbi.nlm.nih.gov/books/NBK99649/
[6] Cooke, Gary, & Stammer, John. (1985). Grade retention and social promotion. CHILDHOOD EDUCATION, 61 (4), 302-308. EJ 315 804

Ponto helps wearers! Learn faster. Remember more. Reduce listening effort.

By now you’re likely familiar with BrainHearing™, our guiding principal when it comes to developing our hearing systems. Simply put, it is an acknowledgement that the most vital hearing processes, including speech comprehension and understanding, occurs in the brain, not ears. Therefore, effective hearing systems need to make it as easy as possible for your brain to make sense of incoming sounds, not just pick up and amplify them. Our Ponto™ bone-anchored hearing systems (BAHS) support better sound processing that enables wearers to learn faster[1], remember more[2], and expend less listening effort[3] — and we have the evidence to prove it.

Learn faster with Ponto

Principal investigator Professor Andrea Pittman of Arizona State University studied 17 preteen children, 16 of whom had conductive hearing loss and one with single-sided deafness (SSD). She initially tested the children with the Ponto Power fitted on softbands. Prof. Pittman had the children listen to and learn six new made-up words and assessed the number of repetitions required before each child learned the words. Then she repeated the test, only this time with the Ponto Power affixed to the children’s abutments. The results were significant — it took the children approximately 166 trials to learn the words when sounds were transmitted through the skin via the softband yet only 60 trials when sounds were transmitted directly through the attached devices. That’s an impressive 2.5 times increase in learning speed!  

Ponto helps wearers remember more

Professor Thomas Lunner worked with Oticon Medical at the Ericksholm Research Center in Denmark to assess how Ponto aids in improving memory. Participants in the study included 16 adults in their late fifties with conductive or mixed hearing loss. Again, the subjects were first tested wearing their Pontos on softbands only. Their assigned task was to recall seven words after listening to sentences including each word individually. The results showed the subjects remembered the words at a rate of approximately 46 percent. However, when they wore their Pontos on their abutments and were tested again, that number rose to a significant 52 percent. This means wearers experienced a 13 percent relative improvement in ability to recall with direct sound transmission vs. skin transmission — likely because fewer mental resources were needed to process the signal, and so more can be devoted to memory.  

Reduce listening effort with Ponto 3 SuperPower

The principal investigator in this study was Oticon Medical, working out of our Global headquarters in Denmark. Participants consisted of 21 adults in their late 50s with conductive or mixed hearing loss. They were tested using three different processors with different maximum outputs: Ponto Pro, Ponto 3, and Ponto 3 SuperPower. Participants were tasked with listening to and repeating sentences heard through background noise, while an eye-tracking camera monitored their pupil dilation, an established measurement of listening effort wherein the pupil dilates in direct relation to the amount of listening effort expended. Our researchers compared the performance of the subjects using each device and noted a sizeable decrease in listening effort and retention with use of the Ponto 3 SuperPower as indicated by reduced pupil dilation as compared to the Ponto Pro and the regular Ponto 3. This supports the idea that higher power hearing systems allows wearers to comprehend speech with significantly less effort.  

What it all means to you

The evidence is in that direct sound transmission through a Ponto system with a higher maximum output offers far more than the ability to hear better. When worn implanted on an abutment, these powerful BAHS let you learn 2.5 times faster — especially important for school-age wearers. They improve ability to remember by 13 percent, which offers an advantage to older wearers who might have memory concerns in general. And they require wearers to expend less listening effort to keep up with conversations, reducing the fatigue associated with difficulty straining to hear and understand speech daily. Ready to try your first Ponto BAHS or upgrade to our latest Ponto 3 model? Click below to get in touch with an audiologist in your area who can help you choose the best option for your hearing needs.

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[1] Pittman, A. L. (2019) Bone conduction amplification in children: Stimulation via a percutaneous abutment vs. a transcutaneous softband. Ear Hear. 
[2] Lunner, T., Rudner, M., Rosenbom, T., Ågren, J., and Ng, E.H.N. (2016) Using Speech Recall in Hearing Aid Fitting and Outcome Evaluation Under Ecological Test Conditions. Ear Hear 37 Suppl 1: 145S-154S.
[3]  Bianchi, F., Wendt, D., Wassard, C., Maas, P., Lunner, T., Rosenbom, T., and Holmberg, M. (2019) Benefit of higher maximum force output on listening effort in bone-anchored hearing system users: a pupillometry study. Ear Hear.

 

Isabella’s Ponto Bone Anchored Hearing System helps her on and off the volleyball court

Despite being born with a bilateral conductive hearing loss, Isabella doesn’t let anything, especially her hearing loss, slow her down. She has microtia on her left side and bilateral atresia. When her parents realized she had a hearing loss at birth, they worked quickly to ensure she received early intervention.

“When I was little and I hadn’t had my reconstruction surgery yet for my microtia, I used to tell people that I was in an alligator fight and that an alligator bit my ear off. I was instantly the coolest kid.” – Isabella Rodriguez.

Her mother, Lupita, began advocating and researching this new world of hearing loss which led her to join Georgia PINES (Parent Infant Network for Educational Services). Through her work as an early interventionist for Georgia PINES and Georgia Hands and Voices, she learned first-hand about the latest hearing technology and spoke with local audiologists. This is how she came across Oticon Medical’s Ponto Bone Anchored Hearing System.

Starting high school off right
As Isabella entered high school, her parents knew she needed to upgrade to the newest technology to ensure she was set up for success. After trialing different brands, Isabella chose the Ponto and started her high school days with a Ponto Plus Power on a softband. “The Ponto was a lot clearer, had less feedback and had a sleek design, while the other options sounded robotic,” she explains.

And in a school of more than 3,000 kids, her Ponto made a difference. Whether she was taking part in group projects, communicating with classmates in the cafeteria, or socializing in the courtyard.

“In the classroom, the new lecture style of teaching where the teacher moves about the room would have normally been really difficult for me to hear, but my Oticon Medical Streamer helps. I wear my Streamer and the teachers use an FM system to send sound to my Streamer which sends sound to my Ponto.” – Isabella Rodriguez

Connecting with other Ponto users at local events
As Isabella now plans for college next year, she and her family have started researching abutment surgery. Surgery can come with a lot of questions and we know that conversation and discussion through the lens of experience is the most powerful tool in making the right decision for the best hearing care. After attending a bone anchored hearing meetup in Georgia, hosted by Ross Wiseman earlier this year, Isabella and Lupita were able to meet other Ponto users who wear their Pontos on abutments.

“We were able to connect with Ross and two other women who had the Ponto abutment surgery at the meetup. They explained their experience with the surgery and how their hearing had improved,” Lupita explained.

Wearing a Ponto Bone Anchored Hearing System in high school
Isabella currently plays competitive volleyball with her Ponto, which she says helps her hear coaches and teammates.

“I never play without my Ponto.” – Isabella Rodriguez

As she’s grown older, she has gained more confidence and become used to educating her teachers and fellow students on what it means to have a hearing loss. To other young people with hearing loss who may be struggling with self-confidence, she says, “Don’t be ashamed. Everyone is different and there is nothing wrong with you.”

 

If you’d like to learn more about the latest Ponto device – the Ponto 3 SuperPower, click below to be connected with an audiologist.
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The Ponto 3 SuperPower ignites a love for music for Talia

Three-year-old Talia Jarvis was born with unilateral microtia and atresia, and bilateral moderate-severe hearing loss. When the Jarvis family adopted Talia in March of 2017, they took her to an ENT right away to begin her hearing journey.

“I wasn’t familiar with all the different devices. Our audiologist said they were all pretty much the same. They didn’t provide the Ponto so we took home a different bone anchored hearing device to trial and it didn’t reach our expectations.” – Laurie Jarvis

Talia’s mother, Laurie, began doing her own research because of the severe feedback issues Talia was experiencing. She began speaking to other users online in Facebook groups like this one and this one that helped her find the Ponto 3 SuperPower and halt her current bone anchored hearing system order until Talia trialed the Ponto. “I told my doctor that if they didn’t let us trial the Ponto device we would be switching to someone else, ” she explains.

Since receiving her Ponto 3 SuperPower Talia’s world has expanded and is happy to wear her device all day. She is now learning language and her mother says she can hear the differences in sounds. 

“With the Ponto, she cried the first time I took it off at night. The next morning she pointed to it on the dresser and every day since then it’s the very first thing she asks for in the morning.

Before it was hard to get her to sit still to read a story. Now she will ask for book after book after book. She wants to learn new vocabulary and is constantly asking me what this and that is. That interest was not there before.” – Laurie Jarvis

One of the greatest differences her family has witnessed is seeing her discover a love for music. At home, Talia now enjoys listening to her sister play the piano, a sound that until recently was something she had not heard.

 

“My oldest daughter was playing the piano one morning and Talia was sitting in her highchair eating breakfast and she looked at me and she pointed to my daughter who was playing and she signed ‘piano; It was obvious that she was hearing something different.” – Laurie Jarvis

If you’d like to learn more about the latest Ponto device – Ponto 3 SuperPower, click below to be connected with an audiologist.

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What I’m doing with my Ponto – a readworthy roundup of accomplishments

Our community is filled with individuals who have overcome tremendous obstacles, advocated for themselves and others, and ultimately found the right hearing solution in the Ponto Bone Anchored Hearing System. Below we’ve highlighted just a few of our incredible community members in hopes that their stories will inspire and motivate, and continue to remind us of what human determination and persistence can achieve.

You can’t be what you can’t see – Marie Wilson 

Annika Sappington – heart warrior

Annika was born with bilateral microtia and atresia and last November was implanted with bilateral Ponto 3 SuperPowers. This month, she underwent open heart surgery to correct a heart anomaly and journeyed from Texas to Boston with her family for the operation. While Annika was in recovery, she wore one of her Ponto’s so she could hear her family, nurses and doctors entering the room.

“She refused to take her Ponto off for four days straight. 24/7 without turning it off. She wanted to be able to hear when the staff came in at night to check her vitals and give pain meds. I thought for sure the battery would run down with nonstop use and it hasn’t.” – Shannon Sappington, Annika’s mother

After a successful surgery, Annika traveled back to Texas, using her Streamer to enjoy her flight home where she is now recovering and jumping back into Summer activities.

“I love that on airplanes Annika can plug her streamer into the screen and it bluetooths to her Pontos—she can watch AND hear movies! Without that streamer, she wouldn’t be able to hear the movie since she has no ears for headphones. The streamer is her own personal headphone! It’s the little things that make a BIG difference!” Shannon Sappington

Emma Bowie – A chance to dance

Emma Bowie was born with left ear Microtia and has a Ponto Plus on a softband. She is a part of the ‘A Chance to Dance’ program at Miss Donna’s School of Dancing in North Carolina, where children with disabilities can learn an array of dance from lyrical, to jazz, to tap. ‘A Chance to Dance’ and Emma were featured on TODAY in a heartwarming video about the studio.

This year she competed at Nationals in a dance duo where she won Gold, earned 2nd place in her category and placed 13th out of 36 duos. Next month, she will be traveling to Secaucus, NJ for the World Dance Championship, and we’re wishing her the best of luck!

Anthony Smith – A real “Hear-O”

You might recognize Anthony Smith by a different name – “Blue Ear”. Blue Ear is a fictional superhero created by Marvel in honor of Anthony, a 9-year old Ponto user who also happens to love comic books. Anthony and his family inspired Marvel Comics to create a new superhero with a listening device, which led to the design of a comic that was distributed as an educational tool for children in NYC public schools. The comic helped teach children about hearing loss and why bullying is intolerable.

This year, Anthony was honored by the Children’s Hearing Institute at the UN, and took home the Hearing “Hear-O” Award for his advocacy and being a real-life inspiration to children with hearing loss all around the world.

Sarah Sabal – engineering her future

Sarah Sabal was unaided until the age of 7.5 when she was adopted by the Sabal family. She now has bilateral Lewin Ears and wears bilateral Oticon Medical Ponto 3 SuperPowers on abutments. She was recently accepted into a competitive engineering pipeline internship program with a multinational power company based in the UK. She is a top student, with the opportunity to pursue a number of different opportunities. Her mother Angela mentioned their concern about wearing the engineering hard hat over her Ponto 3 Superpowers.

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“My biggest worry was the engineering hard hat not fitting over her processors and having to reimplant her, but it was needless worry because the hard hat fits with zero feedback!!” – Angela Sabal

Isabella Rodriguez – advocating for herself on and off the court 

Isabella was born with microtia and atresia and began wearing a Ponto Bone Anchored Hearing System in 2015. She is now in high school and plays competitive volleyball while wearing her Ponto, which she says helps her hear her coaches and teammates. In 2017, she participated in the State Wide Oratorical Contest for the Deaf/Hard of Hearing and took first place. She is now preparing for college next year, where she intends to play volleyball at the collegiate level.

 

“I’m proving people wrong. It’s not just me, anyone with a hearing loss can do it, you just need to keep pushing.” – Isabella Rodriguez

If you’d like to learn more about the Ponto 3 SuperPower for yourself or your child, click below.

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“Her speech has taken off” – Why Staci Taylor chose the Oticon Medical Ponto for her daughter Lexi

Staci Taylor’s daughter, Alexia (Lexi), was born with microtia and atresia on her right side. As many do, Staci began the journey unsure of all of the options for Lexi’s hearing loss. Lexi was aided when she was five months old with a Bone Anchored Hearing System (BAHS) on a softband, and up until that point her family had never heard of the Ponto System.

Upon her daughter’s diagnosis of microtia and atresia, Staci joined several online support groups such as the BAHA Kids Club, where she was able to connect with other parents when the feedback from Lexi’s original BAHS became too overwhelming. Below are a few of the comments and suggestions other parents and bone anchored hearing users shared.

However, because Staci had already received a BAHS through her insurance, she was concerned another BAHS would not be covered. After a long battle with her insurance company, it was through the donor program of the BAHA Kids Club that Staci’s daughter was able to try a Ponto Plus on a softband. “She has had the device for about three months and we have little to no feedback. Her speech has taken off! Before the Ponto, she was only saying a handful of words here and there. Now she is stringing 2-3 words together!” Staci says.

Along with an increase in speech, Staci mentioned that she can whisper a question to Lexi on her right side and she responds without missing a beat. “After her first screening with her Ponto in the sound booth, she did better than she ever has before,” Staci explains.

When asked what her hearing journey with her daughter has taught her so far she said, “Ask about all your options and don’t settle. I pushed several times and finally was able to get our doctor to call an Oticon Medical representative in for our appointment. Now the whole staff at our hospital is Oticon Medical trained. Don’t give up. 

If you are interested in learning more about the latest addition to the Ponto Bone Anchored Hearing System – the Ponto 3 SuperPower – for yourself or your child click below.

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Transitioning from softband to abutment: A video diary of Calvin Underwood’s journey

When a child and parent feel ready to make the switch from wearing a Ponto on a softband to an abutment, there are a number of steps that can help prepare a family. To better illustrate the journey, Brittney Underwood is sharing her son Calvin’s story of preparing for his bilateral abutment surgery in June, where he will be receiving two Ponto 3 SuperPowers.

Video one: Why Calvin is transitioning to Ponto 3 SuperPowers on abutments

“Because he’s wearing his Pontos on a softband he’s not getting the access that he would have if it was direct bone contact” – Brittney

 

Video two: How Brittney is helping her son Calvin prepare for abutment surgery

“We’ve been explaining it to Calvin and showing him pictures of abutments.” – Brittney

 

Video three: Calvin’s recovery from his abutment surgery

“It went really well. He’s not having any pain, he’s just really tired.” – Brittney

 

Video four: Calvin’s recovery from his abutment surgery

“His abutments are healing amazingly.” – Brittney

 

Video five: Calvin receives his Ponto 3 SuperPowers on his abutments!

“He’s snapped on!” – Brittney

 

Video six: Improvements after Calvin’s abutment surgery

“Calvin has exploded in speech. We are loving this new processor and the abutment!” – Brittney 

Video seven: Improvements after Calvin’s abutment surgery

“We are seeing so many big things since he was snapped on! Here he is saying the alphabet with Alpha pig!” – Brittney

 

Are you interested in learning more about the Ponto 3 SuperPower for your child? Click below and a member of our team will be in touch.

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