Tag Archives: ear community

Naven thrives with the help of his Ponto 3 and Ear Community

Naven Ramirez, BMA age 5 of the Philippines, receives (2) newly donated Oticon Medical Ponto 3’s on October 6th, 2017

Naven R. Osic is a five-year-old boy from the Philippines who was born with bilateral Microtia and Atresia. After learning that her son was born missing both his ears, Naven’s mother Donna, worried about how he would adjust to life and what impact this hearing loss would have on him. As Naven got older and began attending a daycare school, he struggled to hear his teachers, keep up with lessons, and make friends.

Donna decided to take action and meet with an ENT at the Philippine General Hospital (PGH) where she received heartbreaking news – without the appropriate hearing device, Naven’s speech, and hearing would continue to decline and he would continue to struggle socially and academically. Further testing showed that Naven had moderate to severe conductive hearing loss and would need bilateral bone conduction devices to help him hear.

Seeking assistance, Naven’s audiologists reached out to Ear Community and on October 6, 2017 he was fitted with two brand new Oticon Medical Ponto 3 hearing devices, donated through Ear Community. Naven now has the auditory tools he needs to thrive and hear his best. 

Naven now is very happy, he clearly hear(s) what we are saying. He can easily keep up (with) the lesson when he is at school – Donna

To read the full story, visit Ear Community and learn more.

This slideshow requires JavaScript.

Are you interested in learning about the Ponto 3 SuperPower for yourself or your child? Click below to be connected to a representative from our team.

Learn more

Learn how Heidi Jeffs chose the Ponto 3 for her daughter Rosalee and became an advocate in the hearing loss community

We hear time and time again from parents of Ponto users that doing research into all the hearing options available is the best way to make the most informed decision. For Heidi Jeffs, research into different hearing groups is what led her to not only find the best hearing solution for her five-year-old daughter Rosalee but become an advocate in the hearing loss community.

Rosalee was born with microtia and atresia on her left side and fit with a bone anchored hearing device on a soft band given to her by her audiologist.

“We met with our audiologist and wanted her to have a device. We didn’t know any different or know of other options.”

Shortly after, Heidi learned about Ear Community, a non-profit organization that offers a supportive community for individuals born with microtia and atresia, and other varying degrees of hearing loss.

The community, which was started by Melissa Tumblin whose daughter Ally was born with microtia and atresia, provides support through their online Facebook group as well as annual picnics around the country.

Through her involvement with Ear Community, Heidi began meeting other parents and bone anchored hearing system (BAHS) users and found that feedback was a common issue.

“We were having a lot of feedback issues. Some moms were commiserating about it and then there was one mom whose daughter had bilateral Pontos and she was like ‘what are you guys talking about?’ The woman said her daughter could lay on a pillow with her Pontos on and it wouldn’t squeal. So I started looking into the Ponto devices.”

The Ear Community picnics were where Heidi became familiar with Oticon Medical and her daughter was able to try on a Ponto device for the first time.

“It didn’t sound echoey. It was just clear. I was flat out convinced. Then the more and more that I learned about the company I was even more impressed. It really felt like Oticon Medical stood by their motto ‘People First’.”

When it was time for Rosalee to upgrade, she tested the Ponto 3 on a softband and said yes to switching to the Ponto. Heidi notes that before, it was difficult to get Rosalee to wear her device, but since switching she hasn’t complained once about the softband being uncomfortable or sore, making the transition very easy and enjoyable.

“Between the quality of products and the integrity of the company, it is so far above the others out there.

Since beginning this hearing care journey with her daughter, Heidi has served on the board of Ear Community for three years and is now a full-time staff member. Additionally, she served on the board for the Idaho Council for the Deaf and Hard of Hearing and was chosen as a parent representative for Idaho to attend the EHDI conference – an early hearing detection and intervention event. To all parents looking to learn about hearing options for themselves or their child with hearing loss, she recommends trying all your options, on your child and yourself, to help you make the best decision for your family.

 

Are you interested in learning about the Ponto 3 SuperPower and how it can provide early support for children and adults with hearing loss? Click below to be connected to a representative from our team.

Learn more

The Gift of Hearing Travels to Africa

We’d like to introduce you to someone very special!

Meet Raheeg Abdelrahman, a four-year-old girl living in Sudan with her younger twin siblings, her mother, and her father, Eltahir.

Raheeg was born with bilateral Microtia and Atresia, and when her family couldn’t find a suitable hearing device in Sudan, they traveled to Egypt to meet with an audiologist who they hoped could help them find a solution. Unfortunately, the family was unable to find an affordable solution and were forced to return home without a device for Raheeg.

That’s when we heard about Raheeg and her family through our friends at the Ear Community and partnered with them to provide two Oticon Medical Ponto Plus hearing devices for her.

The devices were sent to Egypt where Raheeg was fitted with her devices with great results:

 “She can answer our call easily and surely this will help her to receive her lessons like other kids…it is difficult to get words to express my thanks but I say God bless you!

Please convey my deepest heartfelt thanks and appreciation to all of Oticon Medical staff for the help and support they provide to everybody in our Ear Community, and special thanks for Mr. Alan Raffauf, Tove Rosenbom, and Claus Frees Horneman…THANKS to YOU dear friends for giving me hope that my daughter can go to school, hearing sounds and practice her life like other kids.  Thank you for making my impossible dream become real!”

– Eltahir Abdelrahman

We’re honored to have had the opportunity to help provide the gift of hearing to another individual with hearing loss and are thankful for our friends at the Ear Community for sharing Raheeg’s story with us!

If you’d like to learn more about Raheeg and Microtia and Atresia, the Ear Community blog is a great resource!

Arkin Gets His Special Moment and Receives Two Ponto Pluses through Ear Community and Oticon Medical Donation

Meet Arkin Silutan Lerio, a 10-month-old boy from the Philippines, born with bilateral Microtia and Atresia. Today, he’s the recipient of two Oticon Medical Ponto Plus sound processors that were donated through the Ear Community Organization.

At three months old, Arkin and his mother experienced a priceless moment—the moment Arkin tried a bone anchored hearing system for the first time. Jhoan, Arkin’s mother, knew from that moment on that her son needed the help of these devices. Just one month earlier she had learned that Arkn had a severe to profound hearing loss in both of his ears. And now, with the device, she was seeing him respond to words and sounds.

However, the family didn’t have medical insurance or the resources to proceed. And many of the medical professionals Arkin saw were not familiar with seeing a child with Microtia and Atresia. But that didn’t stop Jhoan for working to find answers, so she went online to research.

In her research she found the Ear Community Organization and applied for Ear Community’s hearing device donation program.

On August 15, 2016, Arkin proudly received two newly donated Oticon Medical Ponto Plus bone anchored hearing devices and the Oticon Medical Streamer from Oticon Medical that were donated through the Ear Community Organization.

This slideshow requires JavaScript.

“Many people helped Arkin along the way in order for him to receive his new hearing devices. A special thank you to Izovelle ‘Icee’ Piedad (audiologist with Philiear Inc.) for helping donate her time to fit and program Arkin’s new Ponto Plus hearing devices! Thank you also to Gabe Murphy, who wanted to give back to the Microtia and Atresia community and help a child hear better. Gabe organized a 5k race fundraiser event in Preston, Idaho for his senior class project. Some of the funds that were raised went toward paying for the shipping of Arkin’s hearing device,” Melissa Tumblin, founder of Ear Community explained.

“Jhoan says that Arkin is already hearing better and that he is mimicking sounds. She says that Arkin is already making new sounds and babbling more! Arkin also has a new friend, his monkey that he has decided to call “Otty” that came from Oticon Medical with his gift of hearing.”

Are you interested in learning more about the Oticon Medical Ponto for yourself or your child? We’d be happy to connect with you an audiologist in your area: click below and let us know!


Speak to an Audiologist


You can read Arkin’s story on the Ear Community website here as well.

Meet Ponto User Jack Herne

Happy Friday! Today we’d like to introduce you to Jack Herne who talks about how life has changed since he received his Oticon Medical Pontos.

“The air conditioning would just break up every single conversation. Now, thanks to my Ponto, I can actually hear people talking. There’s a lot less ‘can you repeat that again?’.

Listen to the full story below:

If you would like to know more about the Ponto system and speak to an audiologist, click the button below and we will connect you.

Speak to an Audiologist




Companies that Consider Hearing in their Customer Experience

Today, we’d like to put a spotlight on a few companies that put an emphasis on improving experiences for their hearing impaired customers and employees. While we believe this should be the norm, these businesses offering technology and take into account considerations that many others are not.

Uber Offers Equality in Work Opportunities

uber-icon_0The first such company is Uber, the technology startup that has disrupted the taxi industry. Uber offers customers a Smartphone App to call for car rides. At the same time, it offers work opportunities for many who otherwise may never be able to work as a cab driver. With their App, a hearing impaired driver has  the  chance to choose the communication method they’d prefer which will keep them from missing the work that Uber brings. Steve Claridge, who’s hearing impaired himself, praised Uber’s efforts in a recent post here.

Continue reading

YuXi Receives The Gift of Hearing for the New Year

YuXi Sun Todd is a seven-year-old girl who was born in Beijing, China, and is now a citizen living in the United States. YuXi was born with bilateral Microtia and Atresia and lived in an orphanage in China since she was three months old.

In May of 2015, YuXi was adopted by Lynn and Barbara Todd. Lynn and Barbara were on an adoption list for nearly 10 years before finally receiving the call about YuXi. By the time that call came, they were retired and didn’t have the income they had when they originally set out to adopt. So, they took out a loan and used savings and retirement to make it happen.

Continue reading

Audiology Online Webinar: ‘A Parent’s Perspective in Decision Making in Bone Anchored Hearing Systems’

Last week, Oticon Medical and Audiology Online hosted a webinar to provide an inside look into the perspective and decision-making process of parents with children who can benefit from bone anchored hearing systems.

The webinar featured Melissa Tumblin and Ann Pipes, both mothers to children who use bone anchored hearing systems. Melissa’s daughter Alyssa (Ally) wears the Oticon Medical Ponto Plus on a soft band. Ann’s son, Winslow, made his own decision to have surgery to wear his bilateral Ponto Pluses on abutments as implants. Melissa is also the Founder and Executive Director of Ear Community, and Ann is a founding member of Little Ears Hearing Center, a non-profit pediatric audiology clinic in Louisville, KY.

Melissa and Ann shared their stories, and in doing so the audience learned:

  • How to identify the parent consideration process in selecting a bone anchored hearing system for a child
  • The various types of FM systems used by most schools
  • How Ann and Melissa learned of bone anchored hearing systems and the products their children tried before the Ponto system

Continue reading

Giving Sound to a 6-year-old Girl in South Africa

Think about how many times in a given day someone says your name, and you instinctively turn to address them.

Lebo Pretty Ndladla, a 6-year-old South African native with Microtia and Atresia and Treacher Collins Syndrome, had never had that experience until recently. Lebo’s mother, Xolisile Mgwenya, came across a nonprofit organization in South Africa called the Give An Ear Foundation. Give An Ear helps children with Microtia and Atresia. The foundation worked with Lebo and her mother and got in touch with the South African Association for Audiologists (SAAA) and worked with Ear Community, here in the United States, to arrange for free hearing tests and programming of donated bone anchored hearing devices.

Continue reading

A Summer Full of Amazing Ear Community Picnics and People

It’s been another summer full of amazing picnics hosted by our friends over at Ear Community—with a few more still to come! Each year Ear Community hosts picnics all over the world, where families come together to learn from each other, discuss the latest hearing technology, have fun in the sun, and meet other members of the community!

Continue reading