Meet Amy Mackey. Amy is a two-time survivor of cholesteatomas and a Ponto Plus and Ponto Streamer wearer. Amy is a writer, so we could think of no better way for her to share her story than her written words below. We’ll also be hosting a live online discussion with Amy on Thursday, May 1 at 1pm EST– RSVP here.
I’m a Bilateral Cholesteatoma Survivor
By Amy Mackey
As an infant and small child I suffered from repeated ear infections. I remember my mother used to back me up against the refrigerator to give me nose drops instead of the now used ear drops. She always told me she knew when I had an ear infection; my attitude went south. Under the age of five I participated in a group study for bilateral myringotomy (tubes in both ears). From what I understand I was the only one in the control group to not outgrow my ear problems. Over my tender years I had repeated myringotomies, doses of antibiotics, ear drum lancing and occasionally my ear drums would burst on their own from the pressure of fluids.