Educating teachers and children on the importance of using FM systems in the classroom came up many times at our Patient Advocacy Workshop. Here’s a great video by St. John’s Medical Center that does just that. This is a great tool that shows the difference a FM system can make for a child with hearing loss. Share it with your children and their teachers.
Robb Boss believed he was doing “just fine” coping with his conductive hearing loss. A successful oncology sales representative with a leading pharmaceutical company, Robb’s personable and intelligent communication with colleagues and clients has led to much success and satisfaction for the 41-year-old. But, a brief conversation with a co-worker helped Robb see the downside of his untreated unilateral conductive hearing loss and take action.
After “pretending” to hear nearly his whole life, Robb decided that improving his hearing would improve relationships at work and with the people who matter the most– his family. “I was living my life pretending I could hear, Robb says. “It started hindering communication within the family and professionally. We have five girls and they all have tones of voices that I just couldn’t hear at all.”
Ten-month-old Ashlyn, who was born without ears, would be deaf without her bone anchored hearing system. Like so many, the system is critical to her development and wellbeing.
Her mother, Andrea Dowell, is speaking out and opposing the change to Medicare coverage that could eliminate coverage for bone anchored hearing systems.
“It means a lot to a lot of people.”
A bone anchored hearing device is the only answer for her daughter.
Dr. Sheryl Lewin is a Craniofacial trained Board Certified Plastic Surgeon who has dedicated her career to ear reconstruction, specializing in Microtia ear surgery using the Medpor technique. Her artistic approach and innovative surgical techniques have helped minimize scarring and create more natural appearing ears.
On May 28 at 6pm PST, we hosted a Google+ Hangout On Air with Dr. Lewin about her work. Dr. Lewin discussed simultaneous Microtia ear reconstruction surgery with bone anchored hearing device implants. She also shared more about what the Medpor technique is, a case and took your questions.
You asked, we listened. You asked for more information on how you can help spread the word about your experience. So, we’re offering regular tech tips. Each tech tip shares a free and unique social way to share your story and experience the stories of others. This week, we’re covering how to record your own video. The process is quick and simple. And, knowing how will help you share your story and participate in our video entry contests–like this one! Let’s dive in, here’s how you can record your own video. There are a few different ways you can record your own video to share.
- The Photobooth program on a Mac
- Movie Maker on a PC
We’ll start with the first option– recording video on your phone.
Video with your iPhone
First, go to your camera application and find the option to choose whether you’d like to take a picture or video; scroll over and select the video recorder.
We sat down with Amy Mackey to learn more about her story with hearing loss. After struggling with hearing loss in one ear her whole life, last July her worst fear came true– she also lost hearing in her good ear. After months of nearly total deafness, Amy received her Ponto Plus and Ponto Plus Streamer. Here’s how they’ve been working for her.
When we spoke with Ponto Plus user Amy Mackey last week, she shared how she was using the Ponto Streamer for our video chat. She also shared how she’ll be connecting other devices– like her TV– to the Ponto Streamer with add-on accessories. “It’s just stunning, it startles me sometimes, because I’m just not used to hearing this well,” Amy says in the video clip below.
Alison Sabbar discusses the wireless technology capabilities of the Ponto Plus, including the Ponto Streamer, the device that makes all of this connectivity possible. Now, individuals with single-sided deafness and conductive hearing loss can get the wireless capabilities that they want and need.
The Ponto Streamer has a wireless coil that picks up audio signals and transmits them directly to the Ponto Plus, turning the Ponto Plus into a wireless headset. The Ponto Streamer connects to audio devices such as cellphones, TVs, MP3 players, landline phones and more.
Another accessory, the ConnectLine microphone, clips onto a speaker, so the speaker’s voice can be transmitted directly to the Ponto Plus processor. It’s ideal for school and work settings.
Here’s Alison to describe more about the Ponto Plus, Ponto Streamer and wireless capabilities.
Connie Kehoe, a seasoned Oticon Medical Ponto Pro user, explains how taking the steps to improve her hearing was a chance for bold new adventures.
After experiencing 20 years of hearing loss, Connie was ready to overcome to exhaustion of working to hear people in groups and in noise filled environments– including her own grandchildren.
Learn more about the Ponto Plus here. Do you have questions for Connie? Let us know in the comments section below.
It was our pleasure to sponsor Earicles Los Angeles Microtia Atresia Conference.
Are you interested in attending a Microtia Atresia Conference? Here’s the 2014 line up.